Monday, March 10, 2014

LIfe, lately.

I always feel I start posts With well, a lot has happened!
I cannot believe it has been so long!
For Halloween the kids were witches,harry potter, Dracula, and anything else they were loving at the moment. Halloween is rykers favorite!
Thanksgiving was celebrated with the Palmer side, at Holly's. Ryker was so sick, he had pneumonia.....so sad, and so scary!
Snow came, and so did the cold, yucky air! With rykers lungs, I have grown to really be aware of air quality....man inversions are bad news.
Christmas came, too fun to celebrate with kiddos.  We spoke to the missionaries of the families, and opened presents. Favorites were I pads, guitars, clothes, baby dolls, and basketball shoes.
New years came, we stayed up until 11:30, we watched avatar! Ryker loved the blue men, and Hailey and i played games, and watched the rm! We were getting ready for my sister coming home the next day from her mission!!!
New years day, brought more shoes into our life, and a fun new sister home! We got home late, but so worth it! She is amazing.....cannot.believe.she's.home.
Then it was back to school,  and a new routine. Oh, we thrive off a good routine.
February was sad.....grandpa miller died. We went to Arizona for his funeral. We got to see so much family......he would have loved to see everyone laughing and being with each other! We traveled without radio, DVD, or really anything the whole time.  We read a lot of books and explored a lot of the beautiful scenery.
I also went in for physical,  early on. They found that my platelets are low. Like really low. Platelets are in your blood and make your blood clot. I don't clot. I was tested after i returned from our trip, yep super low. I was started on 60mg of prednisone. I was at  ten, and at the end of the week they were 149. 9 above normal. 140-440 is normal, I have been off and on exercise restrictions due to the heavy bruising. I have been diagnosed with itp....basically they don't know what causes it, unknown bruising and red dots.

Did I have symptoms?
Tired
Achey
Felt out of shape
Headaches
Big, huge bruises overnight
Littles red dots


Most of those are just being a mom....I didn't know that anything was wrong. I was so scared when they sent me to an oncologist hematologist. I was told not to Google anything!
They tested me for autoimmune diseases,  asked cancer questions, lots of things. So frightening.
I just pushed thru the pain of exercise, of life, and many other things.
Now, I am still on 40mg,   they tried the taper, I dipped to 104....I go in again on Thursday to see him, just not a weekly blood test that has become my new normal.
I am super active....this new life has been hard. I so badly want to do everything that is so fun and easy to me....but i do
n't feel that good😕 that is a tough pill of pride to swallow.
The effects of pprednisone are mean. They are moody, hungry. Weight gain, headaches, insomnia, tired, but they are platelet makers.....my body eats platelets..I have an autoimmune disease, and I am 32.....wow.

Well, ryker is sick with viral bronchitis so I'm sleeping, or not, in his room. We started a new steroid for him tonight. I get really scared when he or Hailey is sick.....mamma bear comes out!

Hopefully we can be Palmers not on steroids soon.,..saying a lot of prayers, and trying to count our blessings.

Hopefully I can count the miracle's and remember them.

Found out what was wrong.
Ryker didn't have pnemonia.
We are warm.
We have had so much family support.
We feel prayers.
We have each other.
We are at home, half asleep.

I will update better.  We are doing good, hopefully we will all be hiking the mountains, marathoning, I will take anything, soooon!!!